1.1.Do I need to register to use the Sample Catalogue?
1.2.How do I request access to samples in the Sample Catalogue
1.3.Do I have to pay for the samples?
1.4.Who decides whether my request for samples is granted?
1.5.Do I require an ethical review board approval before requesting the samples?
1.6.How do I cite the Sample Catalogue?
We are currently writing the paper for the Sample Catalogue, please cite the RD-Connect Sample Catalogue paper when it is available. Until then, please cite the Sample Catalogue by it’s URL: https://samples.rd-connect.eu/ and the main RD-Connect publication:
Lochmüller H & Badowska D, Thompson R, Knoers N, Aartsma-Rus A, Gut I, Wood L, Harmuth T, Durudas A, Graessner H, Schaefer F & Rieß O. RD-Connect, NeurOmics and EURenOmics: Collaborative European Initiative for Rare Diseases. Eur J Hum Genet 2018; 26(6): 778–785.
1.7.How do I acknowledge the biobanks in my publication?
1.8.Can I obtain patient clinical information associated to the biological samples?
1.9.Which biobanks store the samples listed in the Sample Catalogue?
1.10.I cannot find the samples I need, is it possible to ask the biobanks to collect a new sample?
2.1.What is a human biological sample?
2.2.What is a biobank?
2.3.What are samples used for? Who is using them?
2.4.How do I remove my samples from the catalogue?
2.6.As a patient organisation, can we collaborate with biobanks to set up sample collections?
3.1.How do I include my samples in the Sample Catalogue?
When the first sample data has been uploaded you will receive an account for the Sample Catalogue to maintain the data in your staging area in the future.