Partner organisations

The list below presents the organisations that participated in the RD-Connect project in years 2012-2018. The filter box on the left will let you refine your search.

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AHC Federation of Europe

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Aix-Marseille University Medical School

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AKU Society

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Alstrom Syndrome UK

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Association Française contre les Myopathies (AFM)

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Barcelona Supercomputing Center (BSC)

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Biomedical Research Foundation of Academy of Athens

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CARE4RARE

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Centre for Biomedical Network Research on Rare Diseases

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Centre for Comparative Genomics, Murdoch University

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Centro Nacional de Análisis Genómico

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Centro Nacional de Investigaciones Oncológicas

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Charles University

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Children’s National Medical Center

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CMT France

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Deutsche Gesellschaft fuer Muskelkranke (DGM), Initiative SMA

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Deutsche-Heredo-Ataxie-Gesellschaft (DHAG)

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Dravet Syndrome Foundation

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E-RARE

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ELIXIR

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Euro HSP

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EuroBioBank

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European Bioinformatics Institute

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EURORDIS – Rare Diseases Europe

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FEDERG Initiative

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Finovatis

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Fondation Maladies Rares

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Fondazione Telethon

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Foundation for Research and Technology – Hellas (FORTH)

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Garvan Institute of Medical Research

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Genzyme Europe B.V.

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Hacettepe University

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Hôpital Robert Debré

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INSERM US14 – Orphanet

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Institute of Molecular Genetics and Genetic Engineering University of Belgrade (IMGGE)

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Instituto de Salud Carlos III

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Interactive Biosoftware

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Istituto Superiore di Sanità (ISS)

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Jackson Laboratory for Genomic Medicine

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Karolinska Institutet

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Lakeside Regulatory Consulting Services Ltd.

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Leiden University Medical Center

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LYSOGENE

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McGill University

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Medical University of Graz

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Muscular Dystrophy UK

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National Center of Neurology & Psychiatry (NCNP)

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National DNA Bank-Carlos III. University of Salamanca

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National Genetics Reference Laboratory Manchester

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NephcEurope Foundation

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Newcastle University

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Office of Population Health Genomics (OPHG)

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Ontario Institute for Cancer Research

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Orphan Europe Recordati Group

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PatientCrossroads

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PRO RETINA Deutschland e.V.

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Telethon Network of Genetic Biobanks

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The Centre for Computational Medicine, Hospital for Sick Children, Toronto

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UK Thalassaemia Society

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Universitätsklinikum Freiburg

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Universitätsklinikum Heidelberg

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Universitätsklinikum Tübingen

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University Hospital of Ulm

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University Medical Center Göttingen

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University Medical Center Groningen (UMCG)

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University of Aveiro

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University of Colorado Denver

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University of Leicester

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University of Malta

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University of Patras

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University of Zurich

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University Paris Diderot – Paris 7

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Uppsala University

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Vaincre la Mucoviscidose

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