Linked data and ontology task force (LDOTF)

The RD-Connect Linked Data and Ontology Task Force (LDOTF) aims to advocate the use of Linked Data and Ontologies for managing and integrating rare disease information and make biomedical data easier to use for computational research for the benefit of patients. It does so through providing advice and initiatives such as fostering its own case studies.

The LDOTF brings together key people working on connecting rare disease resources. Participants of related projects including ELIXIRBioMedBridges and Open PHACTS have become full members of the task force.


RD-Connect is a source of rare disease use cases for those projects. Together with BioMedBridges, LDOTF works on showcases of cross-resource research and making data more accessible for research. With Open PHACTS, LDOTF works on drug-discovery for rare diseases.

In November 2014, the LDOTF organised the first RD-Connect ‘Bring Your Own Data’ workshop (BYOD), a combination of tutorial and hackathon. This BYOD was focused on (rare disease) patient registries and biobanks and brought together ‘Data owners’ and Linked Data experts. Two training webinars available online prepared participants to the event.

The event was co-organised by BioMedBridges and received financial support from ELIXIR for external Linked Data experts.