ELIXIR Webinar: Requirements in data protection law and the upcoming General Data Protection Regulation (GDPR) implementation
Regina Becker (ELIXIR Luxembourg) will give an introduction into the upcoming General Data Protection Legislation (GDPR) that will come into force on 25. May 2018. The new regulation has considerable consequences for managing and storing personal data, imposing more responsibility on the data controllers and data processors.
For Patients and Families
The RE(ACT) Congress
The RE(ACT) Congress – International Congress on Research of Rare and Orphan Diseases aims to create a human platform to scale up scientific cooperation on rare and orphan disease. What makes
ECRD 2018: European Conference on Rare Diseases & Orphan Products
The next European Conference on Rare Diseases & Orphan Products (ECRD) is going to take place in Vienna, Austria on the 10th-12th of May 2018. The themes of the meeting
2018 Annual Meeting
NIH webinar Global Perspectives on Standards and Common Data Elements Used in Patients Data and Biospecimens Collection
Sponsored by the NIH Data Science Special Interest Group The NIH Data Science Special Interest Group is proud to welcome the new year of 2018 and host a session* (broadcast
Golden Helix Summer School “Rare Genomics: Genomics of Rare Diseases, Rare Cancers and Rare Drug Outcomes”
The Golden Helix Summer Schools are international educational activities in the field of Genomic Medicine and are organized on a biennial basis, jointly by the Golden Helix Foundation and the
Bioinformatics Tools Used By RD-Connect
Webinar for Biobank Data Managers – How to prepare sample data for the RD-Connect Sample Catalogue (p.2)
Two RD-Connect webinars are coming up on how to prepare biosample data for publication in the Sample Catalogue. The webinar is addressed to EuroBioBank, the RD-Connect biobank network, and biobank
Webinar for Biobank Data Managers – How to prepare sample data for the RD-Connect Sample Catalogue (p.1)
Two RD-Connect webinars are coming up on how to prepare biosample data for publication in the Sample Catalogue. The webinar is addressed to EuroBioBank, the RD-Connect biobank network, and biobank