62,000 samples available via RD-Connect sample cataloguePublished: February 5, 2019
The international RD-Connect Sample Catalogue available at https://samples.rd-connect.eu/ has now received a new batch of over 38,000 samples from EuroBioBank members from the Telethon Network of Genetic Biobanks (TNGB), Italy.(…)
RD-Connect – six years on and outlooks to the futurePublished: October 31, 2018
RD-Connect is celebrating its 6th birthday! The project, which launched on 1st November 2012, received a €12M FP7 grant from the European Commission to develop a major infrastructure for rare(…)
New FAQ section for Sample Catalogue is out!Published: October 19, 2018
We have just published the Frequently Asked Questions for the RD-Connect Sample Catalogue! The FAQ covers a variety of topics, including technical as well as ethical aspects, and is grouped(…)
Today is the World MCT8-AHDS Day!Published: October 8, 2018
Today is the first in history World MCT8-AHDS Day! Celebration of this event is a great achievement of the MCT8-AHDS Foundation, co-founded by Veronica Popa, a member of the RD-Connect Patient Advisory(…)
Recommendations to create Rare Disease RegistriesPublished: September 28, 2018
Watch the new video summarising the key recommendations for setting up a rare disease patient registry.
Slides and recordings from the webinars for the ERNs are now availablePublished: September 26, 2018
In September 2018, RD-Connect together with the ERN EURO-NMD, organised a series of webinars aiming to train the members of the European Reference Networks at all levels. The webinars aimed to(…)
The European Joint Programme on Rare Diseases (EJP-RD) approvedPublished: September 15, 2018
Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To take rare disease collaborative research in Europe to the next level(…)
ERN members: join RD-Connect and attend our webinars to find out how we can support your researchPublished: August 8, 2018
Join to learn how the RD-Connect tools can help ERN clinicians in their everyday work.
Launch of the RD-Connect CommunityPublished: July 31, 2018
We are pleased to announce the launch of the new RD-Connect Community! The RD-Connect Community is an independent, not-for-profit, international association of individuals and organizations sharing the vision of building(…)
EuroBioBank webinar slides availablePublished: July 30, 2018
The slides from the two EuroBioBank webinars that took place in July are now available to download.