An invitation for ERN HCPs to join RD-Connect, an international platform for rare disease data analysis and data sharing RD-Connect is an EU-funded integrated platform connecting databases, registries, biobanks and clinical(…)
We are pleased to announce the launch of the new RD-Connect Community! The RD-Connect Community is an independent, not-for-profit, international association of individuals and organizations sharing the vision of building(…)
The slides from the two EuroBioBank webinars that took place in July are now available to download.
We are happy to present a new video tutorial for the Genome-Phenome Analysis Platform (GPAP). In the video, Steve Laurie demonstrates how to upload clinical information and create pedigree trees(…)
Joseph Irwin, a father of a child with a rare disease, explains the importance of data sharing in rare disease research.
We are delighted to report that the RD-Connect poster “RD-Connect: an integrated infrastructure for data sharing and analysis in rare disease research” is the winner of the poster display at the(…)
The last Annual Meeting in the current EU funding period focused on project’s achievements, plans for the future and sustainability.
This endorsement is a great achievement for RD-Connect and reflects its importance for the rare disease research.
We are happy to report that the role of data sharing has been reflected in two major calls for rare disease research in 2018, announced by E-Rare and by the(…)