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Membership in the RD-Connect Community is free of charge and open to any individual, organisation or research group willing to adhere to the Constitution. Fill the form below to become a member of our Community.



rare disease patient/patient representativeclinical researcher/clinicianbasic researcher/scientistindustry representativerare disease policymakerother (please specify)


individualacademic/research group (you must be the PI/group lead)organisation (you must be entitled to represent your organisation)


university/academic research organisationhospital/medical organisationEuropean Reference Networkfoundation/charitable organisationbiobankpatient registrypatient organisationcompany/commercial organisationother (please specify)


Yes, please list my name as a member of RD-ConnectNo, please keep my name private

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