The webinar will explain what are Findable Accessible Interoperable and Reusable (FAIR) data and why it is critical that different types of information, such as medical records, examination tests, sequencing results and availability of biosamples, are made FAIR at the source. Speaker: Marco Roos, Leiden University Medical Center, The Netherlands; Please register to the webinar here.
The Golden Helix Summer Schools are international educational activities in the field of Genomic Medicine and are organized on a biennial basis, jointly by the Golden Helix Foundation and the Genomic Medicine Alliance. These educational activities constitute a unique opportunity for researchers around the world to expand their knowledge in the rapidly evolving field of
Speaker: Mary Wang, Fondazione Telethon, Milan, Italy; This webinar will demonstrate how to use two tools, that will help you quickly identify patient registries in Europe and beyond that hold data on your disease of interest. They also let you find rare disease biobanks and browse their sample collections, with detailed information about each individual sample.
