The RD-Connect workshop will allow attendants to learn new concepts and tools for applying ontologies to their data and make them interoperable with other data coming from different sources.
The Workshop will consist of brief frontal presentations and practical working groups where participants will learn to make their data interoperable with other sources and databases. The working groups will get together registry owners and bio-informatics experts.
This event is open to health professionals, researchers, medical specialists, medical students and representatives of patient associations, who are involved or intend to establish a rare disease patient registry. A selection process will apply based on the participant’s background and role with reference to registry activities.
Fees and costs: Registration is free of charge. The School does not cover any travel, subsistence and other costs incurred by the participants to attend the School.
Registration is carried out by filling the on-line form
The 3rd International summer school on rare disease and orphan drug registries is running prior to this event (21-23rd September)
Registration can be carried out for either one or both events.
Download a copy of the program here