Nominations to the EURORDIS Black Pearl Awards

14 September 2017

The nominations for the EURORDIS Black Pearl Award …

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New IRDiRC goals for 2027

10 August 2017

The International Rare Diseases Research Consortium (IRDiRC) has announces the new vision and goals: enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention.

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Joanna Vella wins the JRC Malta Young Scientist Award

23 June 2017

We would like to congratulate Joanna Vella, the RD-Connect partner at the University of Malta, who won the JRC Malta Young Scientist Award in the rare diseases field!

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Registration open to the 5th International Summer School on Rare Disease and Orphan Drug Registries

1 June 2017

Register to the Summer School and/or Bring-Your-Own-Data workshop in Rome in September!

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Report from the EURORDIS Membership Meeting in Budapest

31 May 2017

This year’s meeting was special, as it coincided with EURORDIS’ 20th anniversary.

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E-Rare Workshop on Data Sharing and Harmonization

26 May 2017

On the 4th of May, E-Rare – ERA-Net for research programmes on rare diseases, organized in collaboration with RD-Connect a workshop allowing researchers to discuss the obstacles for data sharing and harmonization, and accustom to already available tools.

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Download the new RD-Connect flyer

18 May 2017

RD-Connect has released a new flyer giving an overview on the RD-Connect platform and promote it among researchers.

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RD-Connect annual meeting and Outreach Day in Berlin

5 May 2017

The RD-Connect annual meeting took place in Berlin on the 1-2 of May. During the two days, the project partners presented the project achievements from the last year.

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The official RD-Connect video

3 May 2017

RD-Connect has released several videos that promote different aspects of RD-Connect work.

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RD-Connect workshop in Bahrain

26 April 2017

An international scientific workshop on the 7-8th April 2017 at the Princess Al Jawhara Center in Manama aimed to discuss the mechanisms of preparing a national and Gulf registry for rare diseases and a Gulf plan to deal with rare diseases using international expertise

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