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September 2016

Summer School and Workshop on Rare Diseases at the Istituto Superiore di Sanità

September 26 - September 30
Istituto Superiore di Sanità,
Viale Regina Elena 299
Rome, 00161 Italy
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This autumn, the National Centre for Rare Diseases (CNMR) of the Istituto Superiore di Sanità, Rome, Italy is organising two training events on rare disease registries: The 4th International Summer School on Rare Disease and Orphan Drug Registries (26-28 September 2016). The event is addressed to health professionals, researchers, clinicians and representatives of patient associations involved in establishing rare disease patient registries. Using the Problem-Based Learning methodology, we introduce the attendees to the aims and needs of clinical research registries.…

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October 2016

Course on Next Generation Sequencing in Lisbon

October 24 @ 14:00 - October 27 @ 13:00
Instituto Nacional de Saude,
Av. Padre Cruz, 1649
Lisboa, 016 Portugal
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3GbTest and RD-Connect are organising a 4-day course on Next Generation Sequencing, taking place in Lisbon, Portugal on 24-27th October 2016. International speakers will elaborate on clinical diagnostics using exome/genome sequences, variant identification and analysis including afternoon practical sessions. The event will include a hands-on training session on the RD-Connect platform. 3GbTest was funded until Aug 2015 under EU FP7 and aimed at introducing whole genome sequence analysis technologies (3Gb-testing) into diagnostics of genetic diseases. The project continues to organise…

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April 2017

World Orphan Drug Congress USA

19 April 2017 - 21 April 2017
Washington Marriott,
Wardman Park
Washington DC, DC United States
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The World Orphan Drug Congress USA is a place where innovation and expertise is showcased, solutions are found and learning is done. In 2017 we're looking to the future...What, for instance, happens when a global orphan drug biopharma goes into Korea, India and Brazil – places where generics is king? Or how commercially acceptable is an even-higher priced, potentially one-time treatment gene therapy? Is the regulatory and reimbursement pathway more or less the same as other orphan drugs?

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May 2017

RD-Connect Annual Meeting

1 May 2017 - 5 May 2017
Berlin, Germany
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The next RD-Connect Annual Meeting will be held in Berlin in the first week of May 2017 together with the NeurOmics and EURenOmics projects, which will hold their working meetings in parallel. The conference will include a special "Policy & Impact" session on Wednesday 3rd of May to showcase the successes of the projects. Key politicians, patients, pharma companies and other stakeholders will be invited to attend. We are looking forward to seeing you in Berlin next year!

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