Sabina Gainotti

Istituto Superiore di Sanità (ISS)

Sabina is a medical sociologist and a bioethicist.

At the Istutito Superiore di Sanità, she has been collaborating with the Bioethics Unit in several research projects on Public health ethics and research ethics since 2004. In 2011, she joined the National Center for Rare Diseases to collaborate with the EPIRARE European Platform For Rare Disease Registries.

Currently, she is collaborating with RD-Connect especially in the activities concerning rare disease registries and ethical, legal and social issues (ELSI).