Founder and Chairman
Julian Isla is the father of a child with a rare disease. He is founder and chairman of the Dravet Syndrome Foundation and is also the president of the Dravet Syndrome European Federation. As a volunteer he is an observer on the Committee for Orphan Medicinal Products (COMP) at European Medicines Agency. He is also a Microsoft employee with more than 20 year of experience in IT.
Julian is a member of the RD-Connect Patient Advisory Council (PAC).