Newsletters

Subscribe below to our newsletter to receive monthly electronic newsletters with project updates and other news of relevance to the field.

 

Current issue

Issue 32: Genome-Phenoma Analysis Platform and new IRDiRC goals

Past RD-Connect newsletters

2017

Issue 31: Data linkage plan

Issue 30: Report from the annual meeting and Outreach Day in Berlin, RD-Connect video and G2MC meeting in Athens

Issue 29: Patient Advisory Council

Issue 28: Launch of the European Reference Networks

Issue 27: Bioinformatic tools

Issue 26: RD-Connect, NeurOmics and EURenOmics: four years on

2016

Issue 25: Approval of 23 European Reference Networks

Issue 24: ID-Cards and EURORDIS recommendations regarding undiagnosed rare disease patients

Issue 23: FAIR data in patient registries

Issue 22: Panel for Biobank Assessment

Issue 21: Announcement of the Annual Meeting in Berlin

Issue 20: European Reference Networks for rare diseases

Issue 19: Cross-project updates

 

2015

Issue 18: Focus on the American Society of Human Genetics (ASHG) annual meeting

Issue 17: RD-Connect and NeurOmics: mid-year updates

Issue 16: Focus on the RD-Connect genomics platform

Issue 15: The ESHG European Human Genetics Conference 2015

Issue 14: RD-Connect bioinformatic tools

Issue 13: The 2nd RD-Connect and NeurOmics meeting, Palma

Issue 12: Patient registries

Issue 11: RD-Connect, NeurOmics and EURenOmics: a year in review

2014

Issue 10: Rare Disease Biobanks

Issue 9: The 21st EURORDIS Round Table of Companies (ERTC) meting & publication highlights

Issue 8: The Rare Disease-Patient and Ethics Council (RD-PEC)

Issue 7: The 2nd RD-Connect jamboree, RD-Connect Electronic Health Records workshop & updates from NeurOmics

Issue 6: The annual joint projects meeting – Heidelberg, Germany

Issue 5: Rare Disease Day & PhenomeCentral “matchmaking” web portal 

Issue 4: RARE-Bestpractices, 2013 Golden Helix Symposium – 5th Pan-Arab Human Genetics Conference, new associated partners & RD-Connect: a year in review

2013

Issue 3: Horizon 2020, national rare disease plans, and ELIXIR updates

Issue 2: Oncologies and meeting reports

Issue 1: Global Alliance, NeurOmics, EURenOmics and IRDiRC

 

Please contact with any articles for future editions.