Back to directory
Position: Member of DHAG , DHAG-Representative for Neuromics ProjectOrganisation: Deutsche-Heredo-Ataxie-Gesellschaft (DHAG)Area of work: Patient engagement
Member of: Patient Advisory Council (PAC)
Address: Deutsche-Heredo-Ataxie-Gesellschaft , Bundesverband e.V., Hofener Straße 75
, Stuttgart, 70372, Germany
Stefan is a member of the RD-Connect Patient Advisory Council (PAC).
Stefan is a mechanical engineer with two children affected by ataxia.
Analyse and share genomic data
Directory of rare disease biobanks and patient registries
Browse rare disease biosamples stored in biobanks
RD-Connect coordination team
Centro Nacional de Análisis Genómico (CNAG-CRG)
Baldiri Reixac, 4,
Email: Sergi Beltran Agulló (Project Lead) or firstname.lastname@example.org.