Organisation: Istituto Superiore di Sanità (ISS)
Area of work: Registries
Researcher at Istituto Superiore di Sanità (ISS), National Center for Rare Diseases, Department of Orphan Drugs since 2008.
Paola's background is in Chemistry and Pharmaceutical Technologies. Her activity has been focused on policies to facilitate access to medicines for the treatment of rare diseases and on the creation and management of orphan drugs registries, in collaboration with the Italian Medicines Agency (AIFA).
She was responsible for the management of E-rare project: ERA-Net for Research Programmes on Rare Diseases (2006-2010 and 2010-2014) of which ISS is partner.
Currently she is the responsible for the management of registries for Gaucher Disease and for Paroxysmal Nocturnal Hemoglobinuria.
She is collaborating with RD-Connect especially for the activities of WP2 on rare disease registries.