PRO RETINA Deutschland e.V. was founded in 1977 and has approximately 6000 patient members and a scientific and medical advisory board. It is a patient organisation for patients suffering from retinitis pigmentosa, AMD, Usher Syndrom and other retinal degenerative diseases. Pro Retina Stiftung zur Verhütung von Blindheit was founded in 2007.
As part of RD-Connect, Pro Retina will contribute to the following themes:
– involvement of patientorganisations in the establishment of patient registries
– recruitment of patients for clinical trials on the bases of molecular genetic diagnosis
– development and implemantation of criteria for patient-centered research projects