Area of work: Ethical Legal Social Issues
Address: Plateforme Maladies Rares, 99 rue Didot, Paris, 75014, France
Role in RD-Connect:
Euro HSP has a role on the RD-Connect Patient Advisory Council (PAC).
Euro HSP is a Federation of national groups related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease.