Report from the EURORDIS Membership Meeting in Budapest
Published: May 31, 2017This year’s meeting was special, as it coincided with EURORDIS’ 20th anniversary.
E-Rare Workshop on Data Sharing and Harmonization
Published: May 26, 2017On the 4th of May, E-Rare – ERA-Net for research programmes on rare diseases, organized in collaboration with RD-Connect a workshop allowing researchers to discuss the obstacles for data sharing(…)
Download the new RD-Connect flyer
Published: May 18, 2017RD-Connect has released a new flyer giving an overview on the RD-Connect platform and promote it among researchers.
RD-Connect annual meeting and Outreach Day in Berlin
Published: May 5, 2017The RD-Connect annual meeting took place in Berlin on the 1-2 of May. During the two days, the project partners presented the project achievements from the last year.
The official RD-Connect video
Published: May 3, 2017RD-Connect has released several videos that promote different aspects of RD-Connect work.
RD-Connect at the workshop in Bahrain
Published: April 26, 2017An international scientific workshop on the 7-8th April 2017 at the Princess Al Jawhara Center in Manama aimed to discuss the mechanisms of preparing a national and Gulf registry for(…)
Don’t miss out on training opportunities for scientists at the annual meeting in Berlin!
Published: March 22, 2017As part of the joint RD-Connect, NeurOmics and EURenOmics annual meeting in Berlin (1-5th of May 2017) RD-Connect will provide a number of training opportunities for rare disease researchers. These(…)
RD-Connect is on Facebook!
Published: March 3, 2017The freshly launched RD-Connect Facebook page will complement the RD-Connect Twitter and allow to better engage with patient communities.
Interview with the RD-Connect Coordinator in Horizon magazine
Published: February 28, 2017Horizon, the EU Research & Innovation Magazine, has published an interview with Prof. Hanns Lochmüller, the coordinator of RD-Connect, entitled Sharing data between researchers too often an afterthought in rare disease(…)
Rare Disease Day
Published: February 28, 2017As each year, the last day of February is the Rare Disease Day. To raise awareness about rare diseases and their impact on patients’ lives. The campaign targets the public,(…)