The magazine Pan European Networks Health published an interview with RD-Connect focusing on the role of biobanks and how RD-Connect links them up to facilitate in rare disease research.
EURORDIS has published a webinar explaining how RD-Connect supports rare disease research and benefits patients.
The official name of the genomics platform is now Genome-Phenome Analysis Platform, while ID-Cards has been renames to Registry & Biobank Finder.
We are pleased to announce that the next RD-Connect Annual Meeting will take place on the 16-18th April 2018, in Athens, Greece.
We have launched a new version of the RD-Connect website. As well as a new look, the website also has some new content and features.
The focus on Public Private Partnership (PPP) emerged as PPPs are strongly endorsed as a model by EU grant funding schemes.
The nominations for the EURORDIS Black Pearl Awards 2018 are now open. Nominate a Rare Disease Star of 2018 today! The Awards strive to recognise the exceptional accomplishments and groundbreaking(…)
The International Rare Diseases Research Consortium (IRDiRC) has announces the new vision and goals: enable all people living with a rare disease to receive an accurate diagnosis, care, and available(…)
We would like to congratulate Joanna Vella, the RD-Connect partner at the University of Malta, who won the JRC Malta Young Scientist Award in the rare diseases field!
Register to the Summer School and/or Bring-Your-Own-Data workshop in Rome in September!