RD-Connect and biobanks – interview for Pan European Networks
Published: November 1, 2017The magazine Pan European Networks Health published an interview with RD-Connect focusing on the role of biobanks and how RD-Connect links them up to facilitate in rare disease research.
EURORDIS webinar on RD-Connect
Published: October 13, 2017EURORDIS has published a webinar explaining how RD-Connect supports rare disease research and benefits patients.
New names of two of the RD-Connect systems
Published: October 3, 2017The official name of the genomics platform is now Genome-Phenome Analysis Platform, while ID-Cards has been renames to Registry & Biobank Finder.
Save the date: the next RD-Connect Annual Meeting!
Published: September 29, 2017We are pleased to announce that the next RD-Connect Annual Meeting will take place on the 16-18th April 2018, in Athens, Greece.
New RD-Connect website!
Published: September 29, 2017We have launched a new version of the RD-Connect website. As well as a new look, the website also has some new content and features.
Report from the Public Private Partnership workshop
Published: September 22, 2017The focus on Public Private Partnership (PPP) emerged as PPPs are strongly endorsed as a model by EU grant funding schemes.
Nominations to the EURORDIS Black Pearl Awards
Published: September 14, 2017The nominations for the EURORDIS Black Pearl Awards 2018 are now open. Nominate a Rare Disease Star of 2018 today! The Awards strive to recognise the exceptional accomplishments and groundbreaking(…)
New IRDiRC goals for 2027
Published: August 10, 2017The International Rare Diseases Research Consortium (IRDiRC) has announces the new vision and goals: enable all people living with a rare disease to receive an accurate diagnosis, care, and available(…)
Joanna Vella wins the JRC Malta Young Scientist Award
Published: June 23, 2017We would like to congratulate Joanna Vella, the RD-Connect partner at the University of Malta, who won the JRC Malta Young Scientist Award in the rare diseases field!
Registration open to the 5th International Summer School on Rare Disease and Orphan Drug Registries
Published: June 1, 2017Register to the Summer School and/or Bring-Your-Own-Data workshop in Rome in September!