How it works
The RD-PEC responds to any question about ethics, social issues and patient participation related to the work of RD-Connect, NeurOmics and EURenOmics. Anyone with an interest in the work can pose a question to the RD-PEC. The question and our answer will be made publicly available. Your identity and personal details will remain confidential.
RD-PEC is a voluntary, multidisciplinary group comprised of patients, parents, representatives of patients’ organisations, clinicians, legal academics, sociologists, scientists and ethicists. Their work has a collegiate, collaborative and inclusive character. The group provides balanced opinion as well as ethical, social and participatory guidance to enhance the excellence that RD-Connect, NeurOmics and EURenOmics aspire to.