RD-Connect Panel for Biobank Assessment

Application forms submitted by rare disease biobanks will be reviewed by the RD-Connect Panel for Biobank Assessment to ensure adherence to minimal entry conditions and the adoption of any standardisation and harmonisation measures needed for a successful inclusion to the RD-Connect platform.

The  RD-Connect Panel for Biobank Assessment contains experts with knowledge in:

  • Biobanking,
  • Ethical, Legal and Social Implications (ELSI),
  • IT infrastructure and management,
  • Current advances in scientific/clinical research in rare diseases.

Panel members will participate in their personal capacity; the turnover will be on a 2- or 3-year basis and may be renewed once for further 2 years.

Detail of the assessment criteria can be found here.

Example questions that may be asked in the rare disease biobank Assessment Form via the RD-Connect ID-Card can be downloaded here.