Rare disease biobanks are invited to make samples accessible to the wider scientific community via our searchable and dynamic Sample Database, a tool which provides essential information on the content of biobanks that can be shared among researchers.
By contributing to the RD-Connect platform, biobanks will have the opportunity to increase visibility in a global setting and benefits with the possibility to:
- increase sample and data acquisition and sharing
- establish new collaborations and enhance networking activities in the rare disease field
- maximize the impact of your Institution by connecting clinical and bioinformatics data generated from patients’ biosamples
- access training and material on Standard Operating Procedures and policies according to international standards
Rare disease biobanks are invited to submit their applications via the RD-Connect Catalogue. Spontaneous candidate biobanks can apply by proposing their Biobank to the ID-Card, after which a personal secure access to the Application Form will be generated. A panel of internationally recognised biobanking expert will review the biobanks against a set of criteria to ensure minimum quality assurance is met.
Overview of biobank approval process for candidate biobanks
For more information please contact .