The LDOTF brings together key people working on connecting rare disease resources. Participants of related projects including ELIXIR, BioMedBridges and Open PHACTS have become full members of the task force.
RD-Connect is a source of rare disease use cases for those projects. Together with BioMedBridges, LDOTF works on showcases of cross-resource research and making data more accessible for research. With Open PHACTS, LDOTF works on drug-discovery for rare diseases.
In November 2014, the LDOTF organised the first RD-Connect ‘Bring Your Own Data’ workshop (BYOD), a combination of tutorial and hackathon. This BYOD was focused on (rare disease) patient registries and biobanks and brought together ‘Data owners’ and Linked Data experts. Two training webinars available online prepared participants to the event.