Organisation: CMT France
Area of work: Ethical Legal Social Issues
Member of: Ethical Legal Social Issues
Role in RD-Connect:
Muriel is a member of the Patient Advisory Council (PAC).
Affected by Charcot-Marie-Tooth (CMT) disease and from a CMT family, Muriel Gevrey was an active member of CMT-France for several years before becoming president in 2012. CMT-France is a member of the European Organisation for Rare Diseases EURORDIS.