Position: Registry Manager
Organisation: Vaincre la Mucoviscidose
Area of work: Ethical Legal Social Issues
Member of: Ethical Legal Social Issues
Role in RD-Connect:
Lydie worked as the data entry coordinator at the French Agency for transplantation until 2003 and has been the Registry Manager for the French Cystic Fibrosis Registry since 2008.
Lydie is a member of the RD-Connect Patient Advisory Council (PAC).