Organisation: Euro HSP
Area of work: Ethical Legal Social Issues
Member of: Ethical Legal Social Issues
Role in RD-Connect:
Dorthe is a member of the RD-Connect Patient Advisory Council (PAC).
Dorthe was diagnosed with Hereditary Spastic Paraplegia (HSP) at the age of 62. She is the president of the European Federation of HSP (Euro-HSP) and vice-president of the Danish association for Ataxia and HSP.