Alstrom Syndrome UK
Area of work: Ethical Legal Social Issues
Address: 31 Shearwater Drive,, Torquay, Devon, TQ2 7TL, United Kingdom
Role in RD-Connect:
Alström Syndrome UK has a role on the RD-Connect Patient Advisory Council (PAC).
Alström Syndrome UK works to Advance Diagnosis, Care, Treatment and Support for those living with Alström Syndrome in the UK and throughout Europe.