AHC Federation of Europe
Area of work: Ethical Legal Social Issues
Role:
Contact:
Address: Jorusel 18, 109, Reykjavik, Iceland
Role in RD-Connect:
AHC Federation of Europe has a role on the RD-Connect Patient Advisory Council (PAC).
AHC Federation of Europe serves as an umbrella for the European AHC associations and it´s main goals are to raise awareness for Alternating Hemiplegia of Childhood (AHC) and to initiate and support research on AHC in order to find an effective treatment.
Members:
Position: President of AHC Federation of Europe
Organisation: AHC Federation of Europe
Area of work: Patient engagement
