17 February 2015
Launched in 2008 and coordinated by EURORDIS and its Council of National Alliances, Rare Disease Day 2015 is a global event which aims to raise awareness of rare diseases and their impact on patients’ lives. This year’s theme encourages everyone in the rare disease community to Raise and Join Hands to show your solidarity with people living with a rare disease. An official Rare Disease Day 2015 video – Bring People Living with a Rare Disease out of the Shadows and into the Spotlight – has been released to mark the event. There are a number of ways to get involved including becoming a Friend of Rare Disease Day, organising a special event or through posting your picture raising and joining hands to the website. Further information is available here.