EURORDIS has published a webinar explaining how RD-Connect supports rare disease research and benefits patients.
The official name of the genomics platform is now Genome-Phenome Analysis Platform, while ID-Cards has been renames to Registry & Biobank Finder.
We are pleased to announce that the next RD-Connect Annual Meeting will take place on the 16-18th April 2018, in Athens, Greece.
We have launched a new version of the RD-Connect website. As well as a new look, the website also has some new content and features.
The focus on Public Private Partnership (PPP) emerged as PPPs are strongly endorsed as a model by EU grant funding schemes.
The nominations for the EURORDIS Black Pearl Awards 2018 are now open. Nominate a Rare Disease Star of 2018 today! The Awards strive to recognise the exceptional accomplishments and groundbreaking(…)
The International Rare Diseases Research Consortium (IRDiRC) has announces the new vision and goals: enable all people living with a rare disease to receive an accurate diagnosis, care, and available(…)
We would like to congratulate Joanna Vella, the RD-Connect partner at the University of Malta, who won the JRC Malta Young Scientist Award in the rare diseases field!
Register to the Summer School and/or Bring-Your-Own-Data workshop in Rome in September!
This year’s meeting was special, as it coincided with EURORDIS’ 20th anniversary.
On the 4th of May, E-Rare – ERA-Net for research programmes on rare diseases, organized in collaboration with RD-Connect a workshop allowing researchers to discuss the obstacles for data sharing(…)
RD-Connect has released a new flyer giving an overview on the RD-Connect platform and promote it among researchers.
The RD-Connect annual meeting took place in Berlin on the 1-2 of May. During the two days, the project partners presented the project achievements from the last year.
RD-Connect has released several videos that promote different aspects of RD-Connect work.
An international scientific workshop on the 7-8th April 2017 at the Princess Al Jawhara Center in Manama aimed to discuss the mechanisms of preparing a national and Gulf registry for(…)