September 29, 2015
RD-Connect’s International Charter of Principles for Sharing Bio-specimens and Data receives the IRDiRC Recommended label
The International Charter of principles for sharing bio-specimens and data, together with the template for general Material Transfer Agreement (MTA) and Data Transfer Agreement (DTA), constitutes an important enabling tool to improve the governance and audit of sharing data and specimens across multiple international settings. The importance of this document has recently been recognised by the IRDiRC Executive Committee who awarded the charter ‘IRDiRC Recommended’ status. The ‘IRDiRC Recommended ‘label is a quality indicator which is used to highlight key resources which, if used more broadly, may accelerate the pace of discoveries and novel treatments for rare disease patients. Other IRDiRC Recommended endorsed resources include Orphanet, the reference portal for rare disease information (associated partners in RD-Connect). Further information about IRDiRC Recommended including the application process and application form can be found here.