We are pleased to announce that the next RD-Connect Annual Meeting will take place on the 16-18th April 2018, in Athens, Greece.

New RD-Connect website!

We have launched a new version of the RD-Connect website. As well as a new look, the website also has some new content and features.

The focus on Public Private Partnership (PPP) emerged as PPPs are strongly endorsed as a model by EU grant funding schemes.

The nominations for the EURORDIS Black Pearl Awards 2018 are now open. Nominate a Rare Disease Star of 2018 today! The Awards strive to recognise the exceptional accomplishments and groundbreaking work in the field of rare diseases, including the ever-growing contributions of patients’ advocacy groups, volunteers, scientists, companies, media, and policy makers towards alleviating the

New IRDiRC goals for 2027

The International Rare Diseases Research Consortium (IRDiRC) has announces the new vision and goals: enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention.

We would like to congratulate Joanna Vella, the RD-Connect partner at the University of Malta, who won the JRC Malta Young Scientist Award in the rare diseases field!

Register to the Summer School and/or Bring-Your-Own-Data workshop in Rome in September!

This year’s meeting was special, as it coincided with EURORDIS’ 20th anniversary.

On the 4th of May, E-Rare – ERA-Net for research programmes on rare diseases, organized in collaboration with RD-Connect a workshop allowing researchers to discuss the obstacles for data sharing and harmonization, and accustom to already available tools.

RD-Connect has released a new flyer giving an overview on the RD-Connect platform and promote it among researchers.