Loading Events
Find Events

Event Views Navigation

Past Events

Events List Navigation

April 2017

Bioethics symposium in Vienna

April 5
Institute of Molecular Biotechnology, Dr. Bohr-Gasse 3
Vienna, 1030 Austria
+ Google Map

The symposium will discuss the main challenges arising from recent advancements in life sciences. New technologies like stem cell research, organoids and genome editing have raised enormous expectations within the biomedical research community, patients and the general public. At the same time many ethical questions have emerged and need to be discussed in an open dialogue.

Find out more »

World Orphan Drug Congress USA

April 19 - April 21
Washington Marriott, Wardman Park
Washington DC, DC United States
+ Google Map

The World Orphan Drug Congress USA is a place where innovation and expertise is showcased, solutions are found and learning is done. In 2017 we're looking to the future...What, for instance, happens when a global orphan drug biopharma goes into Korea, India and Brazil – places where generics is king? Or how commercially acceptable is an even-higher priced, potentially one-time treatment gene therapy? Is the regulatory and reimbursement pathway more or less the same as other orphan drugs?

Find out more »

Course of the Italian Undiagosed Patients Association

April 27
CISEF-Gaslini, Via Romana della Castagna 11A
Genova, 16148 Italy
+ Google Map

The purpose of the course is to have an overview of existing activities at the international level (USA, Germany, UK, Sweden) and present the Genoa's clinical center, unique in Italy.

Find out more »
May 2017
Free

RD-Connect, NeurOmics & EURenOmics joint Annual Meeting

May 1 - May 5
H2 Hotel Berlin-Alexanderplatz, Karl-Liebknecht-Str. 32
Berlin, 10178 Germany
+ Google Map

The RD-Connect annual meeting will be held back-to-back with the joint NeurOmics and EURenOmics final meetings. On Wednesday 3rd of May, the three projects will host a joint Outreach Day that will bring together patients, policy makers, researchers and pharma companies.

Find out more »

E-Rare Workshop on data sharing and harmonization

May 3 @ 18:00 - May 4 @ 17:00
Ramada Berlin Alexanderplatz, Karl Liebknecht Strasse 32
Berlin, 10178 Germany
+ Google Map

The workshop aims at improving the process of data sharing and harmonization as well as to allow open discussion on further needs. Top specialists in the field will present not only the latest update on the state-of-the-art but also available tools, including hands-on practical session.

Find out more »

Inserm Workshop 246 – phase I in Bordeaux

May 15 @ 15:30 - May 17 @ 14:00

The workshop will focus on the methodological issues of management and reuse of health data and provide insights and tools regarding open data, FAIR data management, data discovery and reuse, and confidentiality and security.

Find out more »
June 2017

Inserm Workshop 246 – phase II in Vandoeuvre-lès-Nancy

June 27 - June 28

The workshop will focus on the methodological issues of management and reuse of health data and provide insights and tools regarding open data, FAIR data management, data discovery and reuse, and confidentiality and security.

Find out more »

Inserm Workshop 246 – phase II in Paris

June 29 - June 30

The workshop will focus on the methodological issues of management and reuse of health data and provide insights and tools regarding open data, FAIR data management, data discovery and reuse, and confidentiality and security.

Find out more »
September 2017
FREE

5th International Summer School on Rare Disease and Orphan Drug Registries & Bring-Your-Own-Data workshop

September 18 - September 22
Istituto Superiore di Sanità, Viale Regina Elena 299
Rome, 00161 Italy
+ Google Map

The Summer School will consist of plenary presentations and interactive small-group exercises, according to the Problem-Based Learning methodology. The first part of the School (September, 18-20) will provide participants with useful tools and methodologies for establish a registry, the quality of the data collected and how a registry is turned into a FAIR resource. The second part (September 21-22) will be a hands-on experience (bring your own data), where the attendees work with FAIR data experts to make their data FAIR and linkable to other data that has been made FAIR before.

Find out more »
€100 - €250

16th CRG Symposium: Seventh International Workshop on Genomic Epidemiology

September 20 - September 22
PRBB Auditorium; CRG – Centre for Genomic Regulation, Dr. Aiguader, 88
Barcelona, 08003 Spain
+ Google Map

The workshop will focus on solutions for collecting and analysing huge data sets, including the identification of rare and common genetic variants associated with disease, functional evaluation of genetic variation, understanding of gene networks and epigenomic phenomena in health and disease, pharmacogenomics, gene-gene and gene-environment interactions.

Find out more »
+ Export Events