Regina Becker (ELIXIR Luxembourg) will give an introduction into the upcoming General Data Protection Legislation (GDPR) that will come into force on 25. May 2018. The new regulation has considerable consequences for managing and storing personal data, imposing more responsibility on the data controllers and data processors.
Promoting ethical standards for primary and secondary uses of data and samples The growing complexity in the use of data highlights gaps in the Ethical Review model currently used throughout. The ethical review for projects using human data and samples is applied unevenly across borders and even across institutions. While some Review Ethical Committees apply
This year, Genetics Matters will be talking about the cancer rare diseases, gene therapy, male infertility, sequencing and the 100,000 genomes project, mitochondrial donations and many more hot medical research topics which may have caught your eye in the news. The event is organised under the umbrella of the Rare Disease Day 2018. The event
The Malta BioBank (BBMRI.mt), Centre of Molecular Medicine and Biobanking and the Research Trust (RIDT) of the University of Malta are organising the 4th National Colloquium on Research in Rare Disease. The event is organised under the umbrella of the Rare Disease Day 2018. The Colloquium is being held with the support of the Dean
We’re excited to take part in a live tweet chat to #ShareOnRare organised by Actelion Pharmaceuticals Ltd. The event will shine a light on some of the mutual issues affecting people living with different rare diseases. Join us on Friday 2nd of March for what promises to be an interesting discussion with three other panel
