Veronica Popa

Allan-Herndon-Dudley Patient Advocate
Veronica Popa

Website: http://www.andreas-rares.eu

I am the mother of a child with Allan-Herndon-Dudley syndrome and a passionate advocate for my son’s condition. I’m reaching out to both patient and scientific communities in order to create the first AHDS patient registry and the first patient organization in order to boost research in this field.

Veronica is a member of the RD-Connect Patient Advisory Council (PAC).