Sigurður Hólmar Jóhannesson

President
Sigurður Hólmar Jóhannesson

Sigurður Hólmar Jóhannesson is the father of Sunna Valdis, a child diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna Valdís is the only individual that is diagnosed with Alternating Hemiplegia of Childhood (AHC) in Iceland.

Sigurður is the founder and president of AHC association of Iceland, co-founder and president of the AHC Federation of Europe, and the co-founder and moderator of the AHC International Alliance. By profession, he is an Air traffic controller.

Sigurður is a member of the RD-Connect Patient Advisory Council (PAC).