Ségolène Aymé


Ségolène Aymé

Ségolène Aymé is a medical geneticist, founder of Orphanet – a portal for information on rare diseases and orphan drugs; and chair of the Topic Advisory Group on rare diseases at the World Health Organization. She chairs the European Union Committee of Experts on Rare Diseases and is the editor-in-chief of the Orphanet Journal of Rare Diseases (OJRD). Ségolène is coordinator of the SUPPORT-IRDiRC project and is a member of the Scientific Advisory Board of RD-Connect.