Senior Lecturer/Chair of RD-Connect Rare Disease Patient and Ethics Council (RD-PEC)
Pauline McCormack (Chair of PEC)
Pauline is a medical sociologist with a background in education, social policy and participatory methods. She works as a Research Associate with the Policy, Ethics and Life Sciences group at Newcastle University. Her research encompasses disability, patient participation and bioethics, in particular notions of power, the patient voice, perceptions of quality of life and how policy serves individuals.
Pauline is researching patient inclusion strategies for RD-Connect and also leads the Rare Disease Patient and Ethics Council (RD-PEC).