Oliver Timmis

CEO at AKU Society
Oliver Timmis

Website: http://www.akusociety.org

Oliver is the Head of Projects at the Alkaptonuria (AKU) Society. The AKU Society is a UK patient group supporting those diagnosed with the world’s first genetic disease, alkaptonuria (AKU). AKU is also known as black bone disease as it turns patients bones black and brittle, causing severe early-onset osteoarthritis. The AKU Society provides advice, access to a UK national centre, and promotes research into understanding and treating the disease.

Oliver leads on funding applications for new projects, allowing for the creation of a National AKU Centre and international phase III clinical trials called DevelopAKUre. Oliver also volunteers at European Organisation for Rare Diseases (EURORDIS) and Findacure, the fundamental diseases partnership.

Oliver is a member of the RD-Connect Patient Advisory Council (PAC).