Dorthe Lykke


Dorthe Lykke

Website: http://eurohsp.eu/

Dorthe was diagnosed with Hereditary Spastic Paraplegia (HSP) at the age of 62. She is the president of the European Federation of HSP (Euro-HSP) and vice-president of the Danish association for Ataxia and HSP.

Dorthe is a member of the RD-Connect Patient Advisory Council.