To help rare disease researchers find the biosamples they need, RD-Connect has developed two systems: Registry & Biobank Finder and the Sample Catalogue.
Sample Catalogue lets the users browse and request individual samples stored in rare disease biobanks and provide information about a range of biomaterials such as primary cells, tissue, DNA, serum, RNA and cell lines (coming soon). Read more>>
In addition, the RD-Connect offers biobanks streamlined workflow, document templates and Standard Operation Procedures (SOPs) for sample handling. It also addresses the requirement for essential data elements in the Informed Consent for protection of patient rights, and return of research results to the patient as well as policies involved in “incidental findings”.
Rare disease biobanks may join the RD-Connect platform and contribute to the Sample Catalogue and to Registry & Biobank Finder. To ensure high quality of biosample data, all participating biobanks need to be first approved by the Panel for Biobank Assessment. Read more about Biobank Assessment process>>
Benefits for the biobanks
By contributing to the RD-Connect platform, biobanks can increase their visibility in a global setting and benefits with the possibility to: