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Connecting rare disease researchers worldwide

RD-Connect is an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research.

To help researchers study rare diseases, RD-Connect links different data types - omics (e.g. genomics), clinical information, patient registries and biobanks - into a common resource. RD-Connect enables scientists and clinicians around the world to analyse genomics data and share them with other researchers. By making data accessible beyond the usual institutional and national boundaries, RD-Connect speeds up research, diagnosis and therapy development to improve the lives of patients with rare diseases.

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Recent News:

Save the date: the next RD-Connect Annual Meeting!

Published: September 29, 2017

We are pleased to announce that the next RD-Connect Annual Meeting will take place on the 16-18th April 2018, in Athens, Greece.

New RD-Connect website!

Published: September 29, 2017

We have launched a new version of the RD-Connect website. As well as a new look, the website also has some new content and features.

Report from the Public Private Partnership workshop

Published: September 22, 2017

The focus on Public Private Partnership (PPP) emerged as PPPs are strongly endorsed as a model by EU grant funding schemes.

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